In 2023, Damien shared publicly that he had been diagnosed with Motor Neurone Disease (MND). He wrote:
MND is a progressive neurological condition that attacks the nerve cells responsible for movement. Over time, it leads to muscle weakness, wasting and eventually paralysis. There is no known cure. The mind remains sharp while the body loses function, speech, swallowing, movement, breathing.²
In Australia, the average life expectancy following diagnosis is approximately 2.5 years, with about 58% of those diagnosed being under the age of 65.³
Still, with the support of carers and close friends, he kept posting. He kept sharing. MND never slowed his love of design.
Damien passed away on 3 April 2025. His funeral was held at St Philip’s Catholic Church in Blackburn North. Family, friends and community gathered to honour him.
He is survived by his wife Elle and their three sons: Levi, James and Leo. In his own words...